Postpartum psychosis, including voices, paranoia or extreme states experienced during or following pregnancy or birth, remains an extraordinarily under-researched and misunderstood topic. The voice of women with first hand experiences are particularly under-represented in research.
How can we better understand the subjective experience of postpartum psychosis – including the nature and content of postpartum voices, visions, and distressing beliefs, their social meanings, and women’s experiences of support and treatment?
Right now, we’re soliciting feedback from the experts – women who have experienced postpartum psychosis, family members and healthcare professionals – regarding research ideas and priorities. If you have a view on what research should focus on, and how it should be done, please consider participating in our short consultation survey here.
This consultation, which runs from September – December 2017, is led by Nev Jones, Marie Hansen and Hearing the Voice’s Angela Woods as part of the Transforming Research through Participation (TRP) collaborative. The feedback collated through this survey will be shared on the TRP site and used to inform the design of a research study to be conducted in 2018.